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Thursday, May 27, 2010

Day in the life of a CF Mom & Child



Well everything's going great! Ty's eating a little snack as I type! I just thought I'd share what a day w/a CF child is like...I had seen this on another blog and thought I'd do one too...plus I'm bored..LOL here goes



*Our Day*



7:00am-Wake up for the day!

7:30am- Ty gets an 8oz bottle w/2 enzymes and 1/4 tsp of salt and his prilosec(YUMMY LOL)

7:30am-8:30am- Play/watch cartoons...Mommy eats her breakfast

8:30am- Ty gets a stage 2 jar of fruit and his sippy cup w/water or left over formula if he didn't finish it in his first bottle.

9:00am- Go for a walk( just started this today)

9:45am-Chest PT for 12min and he falls asleep and naps for about 30-45min

10:00am- Mommy gets a shower

10:30am- Ty gets a snack w/his sippy cup

11:30am- 8oz bottle
12:00pm- Daddy comes home for lunch!

12:30pm- Lunch time! Ty gets a stage 2 jar of vegies along w/his sippy cup Then we all watch Young and the Restless..LOL

1:30pm-nap time for Ty! He sleeps anywhere from 30-45min

2:30pm-Snack time! Ty usually gets yogurt

3:30pm- 8oz bottle

4:00/4:30pm- Ty sometimes gets another nap in depending on how his last nap went or if he seems cranky/sleepy.

5:30pm- Daddy comes home! Ty plays w/Daddy and watches cartoons while we decide on what we're doing for dinner

6:00pm- Dinnertime! Ty gets a stage 2 jar of veggies and his sippy cup

6:30/7:00pm- Bathtime! Ty LOVES bathtime! After that we do his treatment(Chest PT) for 12min sometimes I'll read a book while Daddy gets his bottle ready

7:30/8:00pm- 8oz bottle w/vitamins in it which makes it orange looking(YUMMY! LOL) I call it his orange milk! He gets his prilosec and 2 enzymes then bedtime! Then it's Mommy and Daddy time! Ty may wake up a couple times a night, but will go back to sleep then around 4:00/4:30am he'll wake up and I'll let him sleep in the bed w/us then he'll wake up around 7:00am and we start our day all over again! Some days we might venture out and go riding around, go grocery shopping or go see Aunt Jan or eat lunch w/family.



Soo really Ty's day is no diff. than a child who doesn't have CF...sometimes we might have to add in antibiotics depending on his cultures. Ty has really been healthy so far...no colds except for a runny nose and watery eyes, but I think he has allergies..but that's a whole diff. post! :)

Also thought I'd share that Ty's 2 top teeth are coming in!! And he'll be 9month old tomorrow! MAN how time fly's...well gotta go Ty's getting fussy!

1 comment:

  1. That is exactly how our days goes, except we take our walks in the afternoons. :)

    Does Ty get enzymes with his snacks, too? I haven't started snacks yet, he still gets 5 "meals" a day. Although some meals are just smaller than others.

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