Well everything's going great! Ty's eating a little snack as I type! I just thought I'd share what a day w/a CF child is like...I had seen this on another blog and thought I'd do one too...plus I'm bored..LOL here goes
*Our Day*
7:00am-Wake up for the day!
7:30am- Ty gets an 8oz bottle w/2 enzymes and 1/4 tsp of salt and his prilosec(YUMMY LOL)
7:30am-8:30am- Play/watch cartoons...Mommy eats her breakfast
8:30am- Ty gets a stage 2 jar of fruit and his sippy cup w/water or left over formula if he didn't finish it in his first bottle.
9:00am- Go for a walk( just started this today)
9:45am-Chest PT for 12min and he falls asleep and naps for about 30-45min
10:00am- Mommy gets a shower
10:30am- Ty gets a snack w/his sippy cup
11:30am- 8oz bottle
12:00pm- Daddy comes home for lunch!
12:30pm- Lunch time! Ty gets a stage 2 jar of vegies along w/his sippy cup Then we all watch Young and the Restless..LOL
1:30pm-nap time for Ty! He sleeps anywhere from 30-45min
2:30pm-Snack time! Ty usually gets yogurt
3:30pm- 8oz bottle
4:00/4:30pm- Ty sometimes gets another nap in depending on how his last nap went or if he seems cranky/sleepy.
5:30pm- Daddy comes home! Ty plays w/Daddy and watches cartoons while we decide on what we're doing for dinner
6:00pm- Dinnertime! Ty gets a stage 2 jar of veggies and his sippy cup
6:30/7:00pm- Bathtime! Ty LOVES bathtime! After that we do his treatment(Chest PT) for 12min sometimes I'll read a book while Daddy gets his bottle ready
7:30/8:00pm- 8oz bottle w/vitamins in it which makes it orange looking(YUMMY! LOL) I call it his orange milk! He gets his prilosec and 2 enzymes then bedtime! Then it's Mommy and Daddy time! Ty may wake up a couple times a night, but will go back to sleep then around 4:00/4:30am he'll wake up and I'll let him sleep in the bed w/us then he'll wake up around 7:00am and we start our day all over again! Some days we might venture out and go riding around, go grocery shopping or go see Aunt Jan or eat lunch w/family.
Soo really Ty's day is no diff. than a child who doesn't have CF...sometimes we might have to add in antibiotics depending on his cultures. Ty has really been healthy so far...no colds except for a runny nose and watery eyes, but I think he has allergies..but that's a whole diff. post! :)
Also thought I'd share that Ty's 2 top teeth are coming in!! And he'll be 9month old tomorrow! MAN how time fly's...well gotta go Ty's getting fussy!
That is exactly how our days goes, except we take our walks in the afternoons. :)
ReplyDeleteDoes Ty get enzymes with his snacks, too? I haven't started snacks yet, he still gets 5 "meals" a day. Although some meals are just smaller than others.